Great Review of “What My Grandma Means to Say” in Fifty-five Plus Magazine

The current issue of Fifty-Five Plus Magazine at newsstands and on-line features a fine and sensitive review of JC Sulzenko’s book for children and families, “What My Grandma Means to Say.” Here is the link to the article:  http://www.fifty-five-plus.com/intentional_grandparenting_-_grandma_and_dementia.

In their column “Intentional Grandparenting, Peggy Edwards and Mary Jane Sterne agree with JC that when a grandparent or relative has dementia, it’s a family affair.

Here are some extracts from the review:

“Since life expectancy is increasing and advanced age is the number one risk factor for Alzheimer’s disease, the number of people who have it will grow significantly in the coming years. This means more and more families will face such challenges. Three and sometimes four generations will be involved. Muma’s children who are all in their 60s are struggling with how best to cope, as are her grown-up grandchildren and their children—Muma’s great-grandchildren. Children, parents and grandparents will all benefit from increased understanding and open conversation about what everyone in the family is experiencing when a loved one has dementia.

“The story is in a style that engages children right away. Jake shares his story as he watches his grandma change from awesome traveler, bird watcher, teacher, friend and brownie-baker to someone who can’t cook anymore and does not remember his name or where he lives. He talks about his feelings and frustrations. Jake says:

‘I have a story to tell you. It’s a story with a lot of truth in it. Once you’ve heard it, you can make up your own mind about whether it leaves you a little happy, hopeful or sad—or a mix of all three. That’s up to you.’

“Anyone who has lived with Alzheimer’s disease will relate to all of these feelings. And that is partly why it is so hard to talk about. JC suggests that we use a realistic and inclusive approach when talking with children. ‘Kids are up to it’, she says. ‘They need to know that the disease is not curable and that there are limitations on what they can do. They also need to know that they are welcome to be a part of what happens.’

“JC is encouraging us to open the door and be brave enough to engage in a meaningful way with the children and grandchildren in our lives who are affected by dementia in the family. The book also provides answers to frequently asked questions and a list of sources for further information to assist families and children in learning about Alzheimer’s disease and related dementias.

“The book –beautifully illustrated by Ottawa’s Gary Frederick and published by General Store Publishing House—is available at the public library, local bookstores (I bought five from Mother Tongue Books on Bank Street to give to family members) and online at www.chapters.indigo.ca/ and www.amazon.ca/.”