For Alzheimer’s Action Day, Sept. 21, 2012: Launch of E-book of “What My Grandma Means to Say”

September is World Alzheimer’s Month, with September 21 designated as Alzheimer’s Action Day.

To mark the day and the month that increase awareness about Alzheimer’s disease and related forms of dementia, General Store Publishing House ( launched the e-book of “What My Grandma Means to Say,” JC Sulzenko’s storybook for children in grades 3 – 6 and families, in which someone is living with Alzheimer’s.

“The timing is deliberate,”says JC. “By making the storybook available in a form that is accessible across Canada and world-wide, I hope that families affected by Alzheimer’s disease use the story of Jake and his grandma to launch a positive discussion with their children about dementia. Rather than avoiding conversations about challenges such diseases bring to the lives of families and the children in them, I encourage families to take the big step: use “What My Grandma Means to Say” to build understanding and strategies that support the person living with the disease and each other.

“Children often are drawn into the role of caregivers. They need the chance to find their place in the life of their family as relationships change with the progress of the disease.”

The e-book, which can be ordered through Kindle, Kobo, Sony, Barnes and Noble, as well as independent e-book retailers, completes the cycle which began in 2009 with JC’s ten-minute, one act play for children “What my grandma means to say.” The play’s script is contained in the Discussion Guide for teachers, now available in downloadable format FREE from this website, along with FAQS, sources of further information, activities for the classroom and home and a bibliography. A performance of the play by high school students can be screened on this website, as well.

“I still believe the experience of reading “What My Grandma Means to Say” is most effective when family members hold the actual storybook in their hands. Sitting together, feeling the book in their hands, brings them closer as they, through the story, learn about Alzheimer’s and what they can and cannot hope for as they deal with how the disease affects the life of someone about whom they care.

“I’m a realist, though: the e-book has the potential to many more families in such situations than a hard copy of the book. I am thrilled with the way General Store Publishing House adapted the original book for e-readers. I hope families and children benefit from “What My Grandma Means to Say” wherever they are and whenever they find themselves in such a situation.”

The 48-page storybook, first published in 2010 and illustrated by Gary Frederick, is available from General Store Publishing House (1 800-465 6072) at a retail cost of $12.95. The book includes answers to frequently asked questions and lists sources of further information.

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